My Story


  What Happened To Me
 

 

About 6 years ago, aged 16, I used the computer about 10 hours per day for a number of years. I wanted to be a software programmer and dedicated most of my time to achieving that goal. I was a geek! Not only did I use the computer but I also had a television in my room and a stereo which were often both on at the same time.

After a few years of computer-usage, I developed a cluster of large, extremely painful to the touch, red swellings on my left temple. 'What's this then?' I thought. I assumed it was just a phase of acne, even though it was extremely painful, and just ignored it, hoping it would go away. About a week later still, it developed it on my right side - very strange.

I continued to get these painful clusters of lesions for several weeks before realizing that whenever I stopped using the computer for a day or two, they started to clear up and it gave me great relief. Could it possibly be the computer that was causing it? I didn't think so, it seemed too weird. I didn't think that was possible. I assumed it was down to poor air quality or something similar and just hoped it would go away sooner or later

.

It continued, and I began wondering if it really could be the computer monitor, or perhaps some sort of radiation or electricity leaking from it, that could be causing my symptoms. I started asking around. The reaction was pretty-much unanimous: 'Computer monitor's can't possibly harm you!', 'It's just acne, you'll grow out of it', 'I've never heard of that!!!', 'There's no way computer monitor's can emit radiation!'. And my doctor? She thought I was fairly crazy!!!

That was that then! I still felt as though it was being in front of the computer monitor that was causing it, but I didn't exactly have a choice - by now I was proficient in software programming and had just enrolled on a 2 year computer course. I couldn't exactly just stop using computers - people would think I was mad & I would have no career!

BIG MISTAKE! In the numerous years that followed, it gradually became worse and worse. Not only was I getting these painful lumps, but my skin started to feel like it was burning - like a sunburn type of feeling. The whole of my face began to itch and tingle. I had a horrible icky feeling all over my face and my cheekbones began aching severely. My skin was a mish-mash of horrible problems - lumps, blisters, lesions - call them what you want. It was horrendous.

After 2 years I'd had enough. I remember waking up one morning, my face burning horrendously from using the computer the night before. It was itching intensely and covered in various lesions, spots, blisters. My cheekbones were aching, my skin hot and prickly. My forehead felt extremely thin and delicate and horrible. My eyes were bloodshot, and I had zero energy.I couldn't take it!!!!! I made the decision to quit college & stop using computers there and then.

One day, a few weeks after quitting college, and purely by chance, a friend came across an article about 'ElectroSensitivity' from a support group in Sweden. Under the heading 'Warning Signs', were a list of symptoms one after the other that virtually exactly matched mine. And the cause? VDT's - the common swedish term for a computer monitor! I couldn't believe it!! For the first time in my life, it realized that yes it was possible to be 'allergic' to computer monitors. Not only had I been vindicated, there were thousands of people dotted around the globe going through exactly the same thing! Suffering the same problems, the same lack of belief from people, and the same hardship of being forced into relinquishing their careers in favour of relief from their symptoms.

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  What's It Like Being ElectroSensitive?
 


I'll tell you later!

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  How can I use a computer and watch TV?
 


Here's a picture of my setup. I have cable box, DVD player, video and computer base unit connected to an LCD projector. The LCD

 


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  My Symptoms
 


This list of symptoms was written when I first had ElectroSensitivity so I could pass them onto my doctor to help them understand it.

The blue text indicates the things that I believe bring the symptoms on.

  • Very strong, almost unbearable feeling of sunburn around the face. The burning isn't visible. It takes between 9-12 hours to go away.: Monitor's & TV's
  • Tingling/pricking and an icky feeling around the face and just below the hairline at the back of the neck. Almost as bad as the burning feeling. Monitors's & TV's
  • Intense itching all around the face. After computer usage stops, the itching continues until I shield myself from light for a certain period of time (anywhere from hours to days, dependant on how long I use the computer for). Monitors & TV's
  • Feeling of very thin, delicate and painful to the touch skin on the forehead. This is accompanied by round, completely painless isolated lumps which form underneath the skin. Monitor's & TV's
  • Heating up under the skin. Not the same as the sunburn feeling! Mostly noticed this when using a computer although noticed it at other, seemingly random times.
  • Large, very painful to the touch red swellings which appear on the temples. They usually appear in clusters of 2-3. They take around a week to disappear after exposure and leave a scar on the skin. Monitor's, TV's, wood varnish, glossy paper, stereo speakers, new clothing
  • Whiteheads in various places around the face. Completely distinguishable from normal acne in that they develop very quickly after exposure in large patches. They are more painful than normal whiteheads and leave scars. new clothing, stewarding jacket, hair wax.
  • Strong aching pain under the skin around the cheekbones. Seems to be bad when other symptoms are bad. Particularly notice it when listening to stereo or in shops.
  • Throbbing pain in the back of one or both eyeballs, coupled with bloodshot eyes. Again this is bad when other symptoms are bad. Worst in the morning.
  • Weakness and feeling of complete tiredness. When getting a lot of reactions at the same time.
  • Various types of spots/lumps/blisters & rashes on the face (too many to list) from a wide range of things I come in contact with. they can sting, itch, tingle, or sometimes they are even completely painless! Some seem to form from under the skin, others actually in the skin. Some leave scars, others don't. Shampoo, deodorant, hair gel & wax, clothing (different garments give me different reactions), toothpaste, paper, almost all types of surfaces and finishes (paint, lacquer, varnishes), carpets.

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